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Understanding Carer Burnout and Respite

What is carer burnout?

Caring for a sick family member or an older adult over the long term comes from love, but it also drains energy to an extreme. Many carers carry a heavy physical and emotional burden without noticing, and often realise how serious the problem is only when "burnout" appears.

Carer burnout is a state of physical, emotional and mental exhaustion caused by long-term care stress. It is not ordinary tiredness. Not recovering energy even after rest, feeling numb or fed up with the work of caring, and always feeling that "nothing is done well" are all typical features of burnout. The state deepens step by step, from occasional tiredness at first to complete exhaustion.

Research shows that 40–70% of family carers have clear depressive symptoms, and that carers have a 63% higher risk of death than non-carers of the same age. Many carers are used to putting the patient first, and as a result often neglect their own health.

Warning signs of burnout

Noticing the following signs early helps to take action before the problem gets worse:

Physical signs

  • Often feeling very tired, and unable to get going even after enough sleep
  • Lower resistance, and falling ill often
  • Clear weight gain or a big weight loss
  • Frequent headaches or stomach aches, or tense, uncomfortable muscles

Emotional signs

  • Feeling helpless or hopeless, as if trapped
  • Losing patience very easily with the patient or family members
  • Feeling depressed or anxious, or having big mood swings
  • Losing interest in things once enjoyed

Social signs

  • Less contact with relatives and friends
  • Giving up personal interests and social activities
  • Feeling that the people around do not understand
  • Isolating oneself more and more and not wanting to be with people

Behavioural signs

  • Neglecting one's own health needs
  • Relying on alcohol, medicine or constant snacking to relieve stress
  • Changes in sleep habits, such as frequent insomnia or sleeping too much
  • Starting to find caring too much, or making mistakes through neglect

If you notice several of the above in yourself, it does not mean you are not doing well. It only means you need help now. Facing your own needs honestly is a way of looking after yourself, and it is also responsible towards the patient.

Common sources of stress for carers

Only by recognising where the stress comes from can it be dealt with more precisely:

Time pressure

  • Feeling on call 24 hours a day
  • The patient's care needs are hard to predict
  • Hard to arrange any time of one's own
  • Sleep interrupted again and again

Financial pressure

  • Spending on medical care and nursing keeps rising
  • Working hours may need to be cut
  • Income falls while spending goes up
  • Plans for the future are uncertain and hard to make

Emotional pressure

  • Finding it very hard to watch a loved one's condition change
  • Finding it hard to adjust at once to the new role of carer
  • Feeling grief in advance because of a loved one's long illness
  • Often feeling guilty and blaming oneself for not doing enough

Pressure in daily life

  • Having to look after other responsibilities at home as well
  • Hard to balance work and caring for a loved one
  • Friction with other family members over care
  • No private space or time of one's own

Self-care strategies

Looking after yourself well is what lets you look after others better:

  • Accept imperfection—You do not need to force yourself to be a "perfect carer". Everyone has limits, and it is quite normal to admit there are things you cannot do. Managing to be "good enough" is already a great deal.
  • Keep some personal time—Set aside at least 30 minutes a day for yourself, and keep up a small interest or habit. This is not "selfish". It is a basic need.
  • Keep up social contact—Chat with relatives and friends regularly, or join a carer mutual-help organisation and share experiences with others in the same situation, so that loneliness is less likely to set in.
  • Look after your physical health—Have regular health checks, keep up an exercise habit as far as possible, and also watch your diet and sleep.

Getting support

The burden of care should not be carried alone, and the following resources can all be put to good use:

Home nursing service

  • Professional nursing staff visit the home to help
  • Share the usual care work
  • Let the carer free up time to rest
  • Teach the right nursing methods

Respite care

  • Short-term day or residential care
  • Lets the carer put down the work and rest
  • Suits carers who need a longer rest
  • Regular use of this kind of service helps to prevent physical and mental exhaustion

Psychological support

  • Individual or family counselling
  • Carer mutual-help groups
  • Stress management courses
  • Social worker follow-up

Educational resources

  • Care skills training
  • Talks on knowledge about illnesses
  • Carer workshops
  • Online learning resources

Our home nursing service can share the work for carers and free up time to rest. Whether you need regular home nursing, cover at short notice, or want to learn nursing skills, our team can help from the side.

Frequently asked questions

What is the difference between carer burnout and ordinary tiredness?
Burnout is more than simply being tired. Even after rest, the person's energy and spirit do not recover, the person feels numb or even fed up with caring, and feels that "nothing is done well". It is physical, emotional and mental exhaustion built up from long-term care stress. It often develops step by step, from occasional tiredness at first to complete exhaustion.
What are the warning signs that I may already be burnt out?
The warning signs fall into four types. Physical signs include persistent fatigue (feeling tired even with enough sleep), falling ill often, and clear changes in weight. Emotional signs include feeling helpless or trapped, getting angry easily, and losing interest in things once enjoyed. Social signs include contacting relatives and friends less and becoming more and more isolated. Behavioural signs include neglecting one's own health needs, changes in sleep habits, and a fall in the quality of care. Noticing these signs early helps to respond before things get worse.
If I show signs of burnout, does that mean I am a failed carer?
Not at all. Showing these signs only means you need outside support, and does not mean you have not done well enough. Admitting that you need help is brave, and it is also responsible towards the person you care for, because a fall in the quality of care is itself one of the warning signs of burnout.
How great are the health risks to carers themselves?
Research shows that 40–70% of family carers have clinically significant depressive symptoms, and carers have a 63% higher risk of death than non-carers of the same age (Schulz & Beach, 1999; Adelman et al., 2014). Because carers often put the patient first, their own health problems are frequently ignored.
What support resources can be used?
Common support includes home nursing services (professional nursing staff visit the home to share the daily care work, giving the carer respite and also guidance on nursing techniques), respite care (short-term day or residential care, where regular use helps to prevent burnout), psychological support (individual or family counselling, carer mutual-help groups, stress management courses and social worker follow-up), and educational resources (care skills training, talks on illness and carer workshops).

Finding the stress of caring heavy? Let our home care team give professional support so that you have room to breathe.

Learn about home nursing services

Disclaimer: This article is general health information and is not professional medical advice. If you have any health concerns, please consult a qualified healthcare professional.

References

  1. Schulz, R., & Beach, S. R. (1999). Caregiving as a risk factor for mortality: The Caregiver Health Effects Study. JAMA, 282(23), 2215-2219. https://doi.org/10.1001/jama.282.23.2215
  2. Adelman, R. D., Tmanova, L. L., Delgado, D., Dion, S., & Lachs, M. S. (2014). Caregiver burden: A clinical review. JAMA, 311(10), 1052-1060. https://doi.org/10.1001/jama.2014.304
  3. Zarit, S. H., & Zarit, J. M. (2015). Family caregiving. In P. A. Lichtenberg & B. T. Mast (Eds.), APA handbook of clinical geropsychology (Vol. 1, pp. 459-492). American Psychological Association.