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Occupational Therapy

Refusing food in dementia?
Eating can break down in the brain, and it is not simply a wish not to eat

When an older adult with dementia starts to hold rice in the mouth without swallowing, pushes the dishes away, or stares at a table full of food, family members often assume that the person is simply resisting food or has no appetite, and may even worry that the end of life is near. In most cases, however, the person is not deliberately refusing to eat. Eating, an everyday activity that looks instinctive, is breaking down step by step under the effect of dementia. The person may not see clearly what food is in the bowl, may have forgotten how to use a spoon, or may be distracted by the sounds and sights around the table. This article explains the causes of eating difficulty in dementia and why the eating process breaks down, and describes how occupational therapy assesses the mealtime situation and works on the environment, tableware, prompting and carer techniques to raise intake without relying on drugs while protecting the older adult's dignity at the table.

Eating difficulty in dementia: why the ability to eat breaks down

Eating difficulty is very common among older adults with dementia and is far from the situation of a single household. A cross-sectional study of long-term care homes in Taiwan used the Chinese Feeding Difficulty Index (Ch-FDI) to assess 213 residents with dementia and found a prevalence of eating difficulty as high as 44.6%, at 36.2% at lunch and 42.3% at dinner (Chang et al., 2017). The figures show that once the disease reaches the middle stage, more than four in ten older adults face a difficulty with every meal. The cause is often a series of dementia-related changes that can be understood and can be dealt with, and not simply a lack of appetite.

Cognitive and behavioural factors affecting eating

To understand what a person who resists eating really needs, it helps first to see at which points the activity of eating can be blocked. The following are the kinds of cause that occupational therapists commonly find during assessment.

Ideational apraxiaThe person loses the ability to plan the movements of eating (apraxia). Even holding a spoon, the person does not know how to scoop up food and bring it to the mouth. Research shows that 24.8% of patients had this kind of apraxia affecting eating. Their scores on an eating behaviour scale were lower, they needed more verbal prompts and help with feeding at mealtimes, and their nutrition assessment scores were also lower. This is common in people at the severe stage (Wu & Lin, 2015).
Difficulty with visual perception and contrastIf white rice is served in a white bowl on a white table, the person may not see where the food is at all, and on the surface seems not to respond to the food. This is why high-contrast tableware is described later in this article.
Distraction and interference from the environmentThe sound of the television, people walking about, or too many bottles and vases on the table all distract the person. Research found that if the light is poor or the room is too noisy at the evening meal, the eating difficulty is clearly worse (Chang et al., 2017).
Other common factorsLow mood, discomfort in the mouth, changes in taste, tiredness, or badly arranged mealtimes can all make an older adult eat a lot less. These need to be checked and dealt with during the assessment as well.

How occupational therapy and speech therapy divide the work on eating problems

This article focuses on the function and behaviour side of eating as a daily activity, including the mealtime environment, choice of tableware, prompting techniques, seating position and carer methods, all of which belong to the professional field of occupational therapy. Coughing and choking, difficulty swallowing (dysphagia) and the prevention of aspiration pneumonia belong to speech therapy. A speech therapist must assess swallowing function and decide whether safety strategies such as changes to food texture are needed. The two professions often work together in practice. If an older adult chokes or there is any worry about swallowing safety, please make a referral across professions and see the dysphagia pages on this website and seek a speech therapy assessment. This article does not give clinical swallowing or food texture modification instructions.

How an occupational therapist assesses eating

An occupational therapist does not only ask how much the older adult ate. The whole meal is observed and analysed as a daily occupation: at which step does the person get stuck? Is it that the food cannot be seen, that the use of utensils has been forgotten, that the sitting position is unstable, or that the surroundings are distracting? The therapist uses assessment tools with proven reliability and validity, and classifies interventions systematically using a professional framework.

  • Recording objectively with tools of proven reliability and validity—The Edinburgh Feeding Evaluation in Dementia scale (EdFED) is a widely tested assessment tool recommended for clinical use. It helps the therapist to record the person's eating difficulties systematically, plan how to deal with them and follow nutritional status over time (Aselage, 2010).
  • Classifying interventions with the person–environment–occupation framework—A review of 45 studies used the occupational therapy person–environment–occupation (PEO) model to divide mealtime interventions into three levels: the person (behavioural interventions), the environment (dining room layout and social interaction) and the occupation (Montessori methods and physical activity). The article also points out that existing approaches seldom cover all three levels at once (Wang & Belza, 2024).
  • Observing the causes in the real mealtime setting—When an older adult has difficulty eating, the cause often lies in the usual table setting and daily routine. When the therapist assesses at home, it is possible to observe directly how the lighting, noise, usual bowls and plates, and the way family members help affect the older adult's eating.

Strategy 1: adjust the mealtime environment

Before changing tableware or the way of prompting, adjusting the mealtime environment well often brings a clear improvement. The principles are to reduce distractions, strengthen contrast and simplify choices: turn off the television and background noise before the meal, clear extra bottles and vases from the table, make sure the lighting is good, and serve only one or two dishes at a time so that a table full of dishes does not leave the person not knowing where to start. These measures respond directly to the research finding that the lower the lighting and the louder the noise, the worse the eating difficulty (Chang et al., 2017).

The research behind high-contrast tableware and serving one dish at a time

Among the strategies for improving the environment, high-contrast tableware has the clearest evidence behind it. In people with advanced Alzheimer's disease, the improvement after changing white tableware to high-contrast red tableware was considerable.

+25%
Rise in the average amount eaten
High-contrast red tableware compared with white tableware (Dunne et al., 2004)
+84%
Rise in the amount of fluid drunk
A 30-day crossover study with 9 people with advanced Alzheimer's disease (Dunne et al., 2004)
Contrast > colour
The point is the colour contrast, and not the colour red itself
Low-contrast light red and light blue tableware had no effect (Dunne et al., 2004)

In that study, 8 of the 9 people ate and drank more, and a follow-up test found that low-contrast light red and light blue tableware had no effect, which confirmed that what works is contrast and not the colour itself (Dunne et al., 2004). In daily care it is enough to choose plain-coloured bowls and plates (avoiding patterns) that contrast sharply with both the food and the table, for example white rice in a dark bowl, or light-coloured dishes on a dark table, so that the food in the bowl stands out visually.

Strategy 2: offer finger foods and adaptive tableware

When apraxia leaves an older adult unable to coordinate both hands to use utensils, rather than switching at once to feeding all the way through, it is better first to find a way for the person to go on eating by hand. Preparing finger foods that are easy to recognise and familiar adds nutrition and is also a practical way to keep the ability to eat independently.

A feasibility study in a care home had 15 people with dementia (93% of them women, average age 85) eat finger foods such as savoury pies and cakes rich in fruit and vegetables. Over the 6-week study period, the participants ate an average of 1.4 pieces (70 g) of finger food a day, which included 41 g of fruit and vegetables, and this did not reduce what they ate at main meals (Visscher et al., 2020). In other words, finger foods are an extra source of nutrition and do not affect what is eaten at main meals.

Besides finger foods, adaptive tableware (such as thick-handled utensils, plates with raised edges and non-slip mats) can make up for the decline in hand coordination and grip, allowing some older adults who cannot use ordinary utensils to go on eating by themselves and keep the dignity of feeding themselves.

Strategy 3: verbal prompts, demonstration and hand-over-hand guidance

If the older adult can still move but cannot start the movement of eating alone, a better approach than feeding every mouthful is graded assistance that steps in one level at a time, keeping as much of the person's own control as possible. The levels of assistance commonly used in occupational therapy begin with the least help, and more help is added only when the effect is not enough.

  1. 1
    Verbal and visual prompts
    The carer can first show the older adult the movement of eating, put the spoon in the person's hand, and then guide with a short, clear instruction (for example "pick up the spoon, take a bite"), and avoid simply urging the person on.
  2. 2
    Hand-over-hand guidance
    If verbal prompts alone are not enough, gently hold the older adult's hand and scoop up the food and bring it to the mouth together. This helps to start the eating movement, and the hand can be let go slowly afterwards so that the person eats alone.
  3. 3
    Feeding all the way through (the last option)
    Only if the methods above have been tried and do not work should the carer switch to feeding all the way through. Give plenty of encouragement while feeding and respond with eye contact, gentle touch and words, and never force-feed.
  4. 4
    Reinforcing with structured practice
    A randomised controlled trial showed that combining spaced retrieval training with Montessori-based activities clearly improved scores for eating difficulty and for being fed (Lin et al., 2010).

The core of the whole intervention is a shift from a task-oriented approach to a person-centred one. A systematic review of mealtime interactions between carers and residents in care homes identified four principles of interaction: building social connection, giving individualised and person-centred care, empowering the person to promote independence, and responding to food refusal with visual, touch and verbal prompts and not with coercion. Moving the model of care from task-oriented to psychosocial helps to improve actual eating (Faraday et al., 2021).

Strategy 4: adjust sitting posture and the pace of eating

Sitting steadily in good posture is the basic condition for eating safely and effectively. Allowing plenty of time and giving help that matches the person's ability spares the older adult the pressure of swallowing hurriedly. The following points are worth checking at each meal (Faraday et al., 2021).

Checklist for sitting posture and pace at mealtimes
  • Sit the older adult upright with both feet flat on the floor, keep the table at a suitable height, and place the food within the person's sight and reach
  • Allow enough time for the meal so that the older adult eats at their own speed, and do not hurry them
  • Give the right amount of help for the person's ability at the time: let the older adult do what they can do themselves, while the family watch and encourage
  • Respect what the older adult likes to eat and how much, so that they keep some control at the table
  • Plan main meals, which need concentration, for the time of day when the older adult is more alert
  • If coughing, choking or difficulty swallowing appears, stop eating at once and refer the person for a speech therapy assessment of swallowing safety

Strategy 5: a regular mealtime and eating together

Eating is more than a physical task of taking in nutrition. It is also an important social occasion. The EDWINA systematic review covered 43 controlled intervention studies. Because most of the studies were small and short, it could not conclude overall which single intervention is certain to work or not to work. Programmes that stress the social side of mealtimes, however, consistently showed improvement in certain aspects of quality of life (Abdelhamid et al., 2016). This finding supports making mealtimes familiar, relaxed and sociable. Keep the daily mealtime and place as fixed as possible, and have a family member or carer sit at the same table, creating an atmosphere of eating together and not one-way feeding. This company is in itself an effective intervention.

Research evidence for each eating intervention

Not every approach that looks reasonable has the same level of research evidence. A systematic review and meta-analysis published in 2023 (7 studies included) compared how well different intervention programmes improved eating difficulty (measured by the EdFED scale), and its results give a clear reference for daily care.

Interventions with supporting evidence
  • Eating ability training: clear effect on EdFED eating difficulty, weighted mean difference −1.36 (95% CI −1.84 to −0.89, p<0.001) (Chang et al., 2023)
  • Spaced retrieval training: positive effect on EdFED; combined with Montessori-based activities it clearly improved eating difficulty (Chang et al., 2023; Lin et al., 2010)
  • Feeding assistance: positive effect on eating difficulty (Chang et al., 2023)
  • Social mealtimes: linked to improvement in certain aspects of quality of life (Abdelhamid et al., 2016)
Weaker evidence or no effect
  • Staff or carer training alone (with no actual eating intervention): no effect on eating difficulty (Chang et al., 2023)
  • Low-contrast light red and light blue tableware: did not help to increase the amount eaten (Dunne et al., 2004)
  • Overall: most intervention studies are small and short, and it is hard to judge effectiveness on their own (Abdelhamid et al., 2016)
  • Few interventions cover all three levels of person, environment and occupation (Wang & Belza, 2024)

Checklist of daily mealtime techniques for carers

The carer is the central partner who puts each treatment strategy into daily life. Building the following techniques into every meal often improves an older adult's eating more steadily than an occasional formal approach.

Daily mealtime techniques for carers
  • Before the meal, turn off the television, reduce noise in the room, clear the clutter from the table and keep the room well lit
  • Choose plain-coloured bowls and plates that contrast sharply with the colours of the food and the table, so that the older adult can see clearly the food in the bowl
  • Put only one or two dishes on the table at a time, to avoid a whole table of dishes leaving the older adult not knowing where to start
  • Give verbal prompts and a demonstration first, guide the hand if that is not enough, and consider feeding only at the end
  • Prepare finger foods that are easy to pick up and familiar to the older adult for extra nutrition, and let the person hold and eat them as far as possible
  • Sit down and eat with the older adult, keep the atmosphere relaxed and do not argue
  • If the older adult chokes or has difficulty swallowing, stop eating at once and seek a speech therapy assessment

Frequently asked questions

When a family member resists eating, does it mean they do not want to eat, or even that they are near the end of life?
Not necessarily. In dementia, resisting eating often reflects a breakdown of eating as a daily activity, and not simply a wish not to eat. The reasons may be that the person cannot see the food in the bowl clearly (visual agnosia or too little contrast), has forgotten how to use utensils (apraxia), is distracted by noise in the room and the television, or is affected by low mood, discomfort in the mouth or changes in taste. Occupational therapy first assesses the real mealtime situation to find the actual cause, and then adjusts the environment, tableware and prompting. In many cases the amount eaten rises clearly after these adjustments. However, if coughing, choking or difficulty swallowing also appear, this is a swallowing safety problem and the person must be referred to speech therapy for assessment.
Why does changing to a red or dark bowl or plate help an older adult to eat more?
Dementia weakens a person's visual perception and ability to tell contrast. If white rice is served in a white bowl on a white table, the person may not be able to see where the food is at all. Research showed that after white tableware was changed to high-contrast red tableware, the average amount eaten by people with advanced Alzheimer's disease rose by about 25% and the amount of fluid drunk rose by 84% (Dunne et al., 2004). The key is contrast and not the colour red itself, and changing to low-contrast light red or light blue tableware had no effect. In practice, it is enough to choose plain-coloured bowls and plates (avoiding patterns) that contrast strongly with both the food and the table.
Should the person be fed directly, or be allowed to eat alone?
As long as ability allows, the person should be given the chance to eat independently as far as possible. This concerns personal dignity and also helps keep existing function. Occupational therapy usually uses graded assistance. First come verbal and visual prompts (for example demonstrating, putting the spoon in the person's hand, or giving a short instruction such as "pick up the spoon, take a bite"). If that is not enough, hand-over-hand guidance is used to start the movement. Feeding all the way through is considered only as the last step, with encouragement continuing throughout. Offering finger foods and adaptive tableware can also let some people who have lost the ability to use utensils go on eating by themselves (Visscher et al., 2020). Research also points out that changing the feeding interaction from a task-oriented to a person-centred and sociable approach improves actual eating (Faraday et al., 2021).
How should the dining area be arranged to help an older adult with dementia?
The core principles are reducing distractions in the environment, strengthening visual contrast and simplifying the choices in front of the person. In practice this means turning off the television and background noise, and removing extra bottles and vases from the table. Make sure the dining area is well lit (research found that the dimmer the lighting and the louder the noise at the evening meal, the worse the eating difficulty). Use plain-coloured bowls and plates that contrast strongly with the food and the table. Serve only one or two dishes at a time, to avoid a table full of food leaving the person not knowing where to start. Keep the mealtime and place as fixed as possible, to create a familiar, relaxed and sociable mealtime (Chang et al., 2017; Abdelhamid et al., 2016).
If the older adult starts to choke or has difficulty swallowing, can occupational therapy help?
Coughing and choking, difficulty swallowing (dysphagia) and the prevention of aspiration pneumonia belong to the professional field of speech therapy. A speech therapist must assess swallowing function and draw up swallowing safety strategies such as changes to food texture. This article does not give clinical swallowing or texture modification instructions. Occupational therapy focuses on the function and behaviour side of eating as a daily activity, including the environment, tableware, prompting, seating position and carer techniques. The two professions often need to work together. If you have any worry about swallowing safety, please see the dysphagia pages on this website and seek a speech therapy assessment.

Dealing with eating difficulty is only one part of the overall care of dementia. You may also read about the full intervention framework in occupational therapy for cognitive impairment and two other common behavioural challenges: the causes of wandering and how to respond to it, and strategies for managing evening agitation in sundowning. If the older adult also has coughing, choking or difficulty swallowing, please see the dysphagia pages and seek a speech therapy assessment.

Disclaimer: This article is general health information and is not professional medical advice. If you have any health concerns, please consult a qualified healthcare professional.

References

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